– ‘The Magic of Wor(l)ds’ blog is a hobby, reviews and other bookish stuff on this site are done for free.
I’m grateful of receiving a free copy from the publisher/author in exchange for an honest review of this book. –
About the Author :
Victoria Scott has been a journalist for more than two decades, working for a wide variety of outlets including the BBC, Al Jazeera, Time Out, Doha News and the Telegraph. Alongside her love of telling real-life stories, she has also always written fiction, penning plays, stories and poems ever since she first worked out how to use her parents’ electric typewriter.
When she’s not writing, Victoria enjoys running incredibly slowly, singing loudly, baking badly and travelling the world extensively.
Victoria is a Faber Academy graduate. She has a degree in English from King’s College, London and a Postgraduate Diploma in Broadcast Journalism from City University, London. She lives near London with her husband and two children, and works as a freelance journalist, media trainer and journalism tutor.
If you were offered the chance to be ‘normal’ would you take it? Do we even know what ‘normal’ is?
The Willow family have been through a lot together. Louise has devoted her life to her family and raising her disabled daughter, Patience. Pete now works abroad, determined to provide more, even if it means seeing less of those he loves. And Eliza, in the shadow of her sister, has a ‘perfect’ life in London, striving to live up to her mother’s high standards.
Meanwhile, Patience lives her life quietly, watching and judging the world while she’s trapped in her own body. She laughs, she cries, she knows what she wants, but she can’t ever communicate this to those who make the decisions for her. Patience only wants a voice, but this is impossible.
When the opportunity to put Patience into a new gene therapy trial to cure her Rett syndrome becomes available, opinions are divided, and the family is torn.
The stakes are high, and they face tough decisions in the hunt for a normal life. But is normal worth it? What do we even consider normal? Is Patience about to find out…?
Having a muscular disease myself I normally shy away from everything, even remotely, having to do with disability, as it’s too close to home I suppose.
However, when I read the blurb of ‘Patience’ by Victoria Scott something clicked, probably because there finally are experimental meds for my ‘illness’ too and I’m also debating whether to take the plunge or not.
No, I didn’t pick up this book believing that reading it would gave me the solution to my conundrum, but I just wanted to meet this family, finding some, I don’t know, like-minded people?
Although I don’t have what Patience has, I can talk/eat/go to the toilet normally for example, I did find her thoughts very recognizable and she’s just lovely and witty, and she made me smile!
I definitely liked she got a voice throughout the book as she made it a bit lighter to read, I believe, not that it’s a dark book, but like said she’s a bit of a fruitcake, in the good, delicious way, and I loved it. 😁
We certainly could be friends in real life, although I don’t know about sharing chocolates 😉 !
The other characters are memorable too of course, I definitely have some Eliza in me and I recognize stuff from their parents in mine.
Furthermore, I must say I can’t believe that this is the debut novel of Victoria Scott as it’s written in such an exceptional and caring way.
It really gives you a substantial glimpse of family life with a disabled kid and how everything, even the smallest things, are always done with that one person in mind.
It’s not only thought-provoking, honest and heart breaking at times, but also very hopeful and uplifting!
A bit of ‘life as it truly is’, warts and all, but still with a silver lining and that’s just a very nice way to get people aware of Rett’s disease (or others) out there.
Truly a book I recommend everyone reading, I promise you’ll love Patience for who she is, one hell of an extraordinary woman, with or without ‘a cure’.
The Magic of Wor(l)ds